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- Before we start to talk about the disabilities, it is important to think
about the labels that are often placed on people. When we use a label, it gives us a certain image of who a
person is. Many times the image
isn’t very positive.
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- We must learn to consider each person with a disability as a unique
individual. Just like each of us
is unique, and have our own goals, needs and dreams, so does each person
with a disability.
- The most important label is the person’s name.
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- There are circumstances when it is useful and meaningful to label or
diagnose a person with a disability.
For example this information is often necessary for funding
decisions and program eligibility.
- There are a number of assessment tools professionals use to make a
diagnosis of a disability.
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- There are three main components of this condition
- Sub-average general intellectual functioning
- Significant limitations in adaptive functioning
- Onset before age 18 years
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- Limitations in adaptive functioning refers to the following skill areas:
- communication self-care
- functional academics work
- home living social skills
- community use self-direction
- health and safety leisure
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- Remember, this is a definition.
It doesn’t tell us anything about the person’s interests,
capacities, or preferences.
- The term Mental Retardation has been used for many years. This term is falling out of favor
& we are now more frequently hearing the term “Intellectual
Disability.”
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- The cause of mental retardation can be identified about 50% of the time. The causes are categorized into:
- Genetic factors and syndromes, which are often hereditary conditions
(Downs Syndrome)
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- Prenatal (before birth): infection, poor nutrition, use of alcohol,
drugs, smoking
- Natal (during birth): prematurity, breech birth
- Postnatal (after birth): accidents, high fever, lead or other toxic
poisoning, head injury
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- Mental retardation is a disorder in intellectual development and
adaptive skills, occurs in the
developmental years (before age 18), and is usually permanent.
- Mental illness is a disorder in thinking, emotions, and behavior. It occurs at any time during one’s
life, and is usually temporary.
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- Nationwide about 5% of the people with retardation live in institutions.
- Most people live with their family or in other community settings.
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- The Developmental Services Program has made a decision to support people
in our region to live in the smallest groupings possible. Most people live at home with their
natural family, or with an alternate family. Some people live in a staffed
residence with one, two or three individuals with disabilities.
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- People with mental retardation are as different from each other as any
other two people.
- A diagnosis of mental retardation does not tell us anything about that
person’s gifts, capacities, skills or how he/she functions on a day to
day basis.
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- We owe it to ourselves and to each individual with whom we work to get
to know him/her on a personal
level. Learn about their
interests, their goals, their hobbies and their dreams.
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- A developmental disability is similar to the definition of mental
retardation, in that it develops before age 22 and it results in
limitations in adaptive skill areas.
- A person with a developmental disability may or may not have mental
retardation or any intellectual impairment.
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- Cerebral palsy is a group of conditions caused by damage to the brain
occurring before, during, or after birth resulting in loss of control of
voluntary muscles.
- Only about half of the people with cerebral palsy also have mental
retardation.
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- Common forms are: Spastic (stiff and jerky motions), Athetoid
(recurring, random, uncontrollable movement of arms and legs), and
Ataxic (effects normal balance).
- The best language to use is:
Karen is a person with
cerebral palsy. NOT: She’s a CP.
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- Once referred to as Autism, it is now more common to hear the term,
“Autism Spectrum Disorders” (ASDs).
This change is being made as a result research which determined
the symptoms of autism fall across a spectrum, from very mild to very
severe, within this heterogeneous group.
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- Autism refers to a condition characterized by impairment of social skills, underdevelopment of
communication and social skills, and repetitive or stereotyped
behaviors.
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- Onset: childhood, generally by the age of 3. With improved assessment methods
earlier identification is occurring more frequently than in the
past. Early identification &
intensive interventions can produce better outcomes.
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- ASD interferes with: learning, developmental rates and sequences,
responses to environmental events and interpersonal relationships.
- People with ASD are represented in all intelligence levels.
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- Causes of ASD are unknown. It was
once thought to be associated with faulty bonding with the parents. This is now considered to be a myth.
- ASD is now considered a genetically-based syndrome.
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- Epilepsy refers to a group of disorders of the central nervous system
that are characterized by sudden seizures, muscle contractions, and
partial to total loss of consciousness.
It is probably caused by abnormal chemical-electrical discharges
in the brain.
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- Many people with epilepsy have no other disabilities.
- Unless controlled, seizures can cause further brain damage.
- There are several types of
seizures, which you will learn more about in additional training.
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- Remove objects that the person may hit
- Protect the head
- Keep calm and alert
- Loosen tight clothing
- Turn the individual to his/her side
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- Seek medical intervention if the person does not come out of the seizure
within a reasonable amount of time
- Provide an opportunity for the person to rest
- Be sure that anti-seizure medications are taken exactly as prescribed
(dosage and time)
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